Seville, 21 (EUROPA PRESS)
Parents of Lucia, the Sevillian baby who suffers from a rare disease called congenital generalized lipodystrophy have already achieved all permissions, both the SAS and the Ministry of health and the doctor of the Hospital ClÃnico Universitario Santiago de Compostela that takes these cases, so that his daughter can be treated in this Galician hospital with leptin used as drugs for compassionate use.
Speaking to Europa Press, Yolanda Morales said Wednesday that the authorization of the Andalusian health service “came by burofax on Friday 2 March, just one day after we interpusiéramos the complaint before the magistrate issue 5 of Seville by neglect in healthcare”.
Morales, who confirmed that this complaint “follows its course”, has also entrusted the treatment to your baby, as well as a child of Malaga is in similar circumstances and which also already has all the permissions for that also is treated with leptin as a compassionate use, “can begin from next week””, which is when they said from Galicia scheduled to that get new doses of the drugs from the United States”.
Sources of the Ministry of health consulted by Europa Press have also confirmed that SAS “authorized the past March 2 the girl of Seville, and on 9 March the child from Malaga, so that they could receive treatment outside Andalusia”, in these cases, the above-mentioned hospital of Galicia.
In any case, these sources of health have now said that, once given permission to be treated in another community, “corresponds to the Xunta de Galicia and the Ministry of health request such authorization,” extreme that, always according to this mother, would have reached, “because we hope that the new dose of us next week”.
This mother already stated at the time “have no problem by the Galician hospital nor by the doctor of the Center, Dr. David Araujo, so that our daughter could access the compassionate use of this medication, who recalled that”If that application is requested, the first days of treatment as would do with Santiago de Compostela, that the girl would have to hospitalize there as this doctor the only person who knows how leptin””its dose and others; “but after what this Galician hospital has proposed is to make the monthly tracking of our girl in the hospital Virgen del RocÃo”.
On this last issue, Yolanda Morales has shown this same Wednesday “doubts” authorities of both communities to reach an agreement so that subsequent follow-ups can be made in Seville, so “if we have to always go to Galicia, so do”, has settled.
As explained to Europa Press this mother to be his daughter so small, this treatment with leptin “would stop the physical degeneration so great that causes their disease that causes the hands, feet and JAWS develop above recommended and also have many spots on the neck and armpits.” “That was you control with the treatment”.
