Shire supports the world rare disease day 2012.
Madrid, March 2012.- Shire supports the world rare disease day 2012. This day is annually celebrated every February 29 (28 February when the year is leap) at the international level in order to draw attention to this type of pathologies as a matter of public health and of the need to raise awareness of them.
The celebration of the world day for rare diseases, is coordinated at the international level from the European Organization for rare diseases (EURORDIS) and by the Spanish Federation for rare diseases (ERDF) in the case of Spain.
Between on February 25 and March 4 in Spain, numerous activities are carried out in different cities. As final CODA to the above-mentioned series of events will be held in Madrid, on March 4, the race III by the hope of families, organized by ERDF and whose sponsorship has been actively involved Shire. The race, the action with greater visibility of the world day, will take place in the Casa de Campo and will bring together more than 3,000 people.
According to data of EURORDIS and FEDER there are between 6,000 and 9,000 rare diseases, which affect approximately 30 million Europeans and 3 million Spaniards. As a leader in the treatment of rare diseases, the Division Human Genetic Therapies (HGT) of Shire, focused his work in research, development and commercialization of treatments for the disease of Fabry, Angioedema hereditary, syndrome, Hunter and Gaucher’s disease, and has set up a portfolio of products and solutions innovative for the treatment of rare diseases.
The Shire mission is to help people with diseases that affect their living conditions may have a health better. For us, this mission includes improving access to information and diagnosis as well as providing much-needed treatments for rare diseases ”, according to said Juan Ferrero, Director General of Shire HGT in Spain. this day is a special occasion to demonstrate once again our solidarity with the rare disease affected patients and their families. The rare diseases day world hope will serve to highlight the need for safe and effective treatments and services, and is a wake-up call about the conditions of life of these patients and the public health problem that represent ”.
Shire also sponsor various initiatives related with the rare disease day world in other cities around the world, as for example Deuxième Journée des Maladies RareÅŸ ” (second day of the rare diseases) in Lausanne, Switzerland, February 25; the I Gala dinner charity of EURORDISon 29 February in Brussels; Day in the MassBio rare diseases at the Massachusetts State House, on 29 February and the day of the FDA for the support to patients for rare diseases, in Washington, D.C., on 1 March.
About Shire HGT
Human Genetic Therapies is the Division of the biopharmaceutical company Shire which investigated and develop treatments for genetic diseases of low prevalence or rare disease: Fabry disease, Hunter syndrome, Gaucher’s disease and Hereditary Angioedema. Its mission is to improve the quality of life of people suffering from these diseases and their families and to provide innovative drugs that help them cope with their illness.
Shire focuses its activity in specific therapeutic areas in order to provide an excellent service to patients, carers and health professionals.
