The Alzheimer heroes aren’t doctors, researchers, etc., but their families and their carers ”.
Jacinto Bátiz, the presentation of the publication ‘ reflections from care to Alzheimer patients ’, edited by the Association of relatives of Alzheimer patients of Bizkaia (Bizkaia AFA) and the San Juan Santurtzi Dios Hospital, and the collaboration of the BBK.
-The publication contains a series of reflections about the care to people with Alzheimer’s disease, and the work of family members and caregivers
– the book was published on the occasion of the celebration, on 21 September, the world day of Alzheimer’s
– the presentation of the publication is made with a table and a video-Forum discussion on Alzheimer, and was delivered for free to attendees
Bilbao, 2011-September on Thursday afternoon was presented in the classroom of culture BBK of Bilbao publication ‘ reflections from care to Alzheimer patients ’, conducted by Dr. Jacinto Bátiz, head of care palliative of the Hospital San Juan of Dios in Santurtzi, and edited by the Association of relatives of Alzheimer patients of Bizkaia (Bizkaia AFA) and the aforementioned hospital santurtziarra, in collaboration with the BBK.
The work includes a series of newspaper articles made by Jacinto Bátiz for 10 years and that publishes annually, coinciding with the celebration of the World Alzheimer day, celebrated every 21st of September. In those articles, Dr. Bátiz makes a review of the various aspects related to the care of persons with Alzheimer’s disease.
As has said Marian Diaz, President of AFA Bizkaia, one of the fundamental values of the work is that it captures the importance of families and caregivers in the care of patients with Alzheimer. Many times they feel or believe that your work is not important, or that it does not provide much, when it is, precisely, quite the contrary, that they are those who carry the burden of care to the patient. In this way, finally seeing the publication is somewhat gratifying, because plasma the enormous value of these people ”.
Also, with regard to health care to persons with Alzheimer, the President of the Association of relatives of sick Bizkaia Alzheimer’s has pointed out the existence of gaps ”. Although the diagnosis is becoming increasingly more early and continue to make enormous efforts in research and the improvement of the treatments, it is necessary to give greater coverage to families in several aspects, such as psychological assistance and counselling ”.
The President of the families of sufferers of Alzheimer’s Bizkaia has also missed more information and training in the management of patients with disorders of conduct and the elaboration of protocols that can serve as a reference when it comes to deal with these symptoms Alzheimer patients ”. Has also affected the need of take account of the palliative care they need patients of Alzheimer end of life, a situation which in some cases can last up to two years, and provide more information and training to families, in order to facilitate decision-making in such situations thatin general, are completely new ”.
Precisely in this spirit, Jacinto Bátiz, — who is also President of the Commission of ethics of the College official of doctors of Bizkaia, Secretary of the Central Commission for medical ethics of the College medical organization (WTO) and member of the Board of Directors of the Spanish society of palliative care (SECPAL) —It publishes informative articles of awareness on the occasion of each World Alzheimer day, articles which have now been grouped 10 years ago, forming the new work.
Publishing publicly reflect on what you learn every day from the care that, as a medical professional, they try these patients. What I intend with this simple book is to share with family members and carers of people with Alzheimer all aspects which, as a medical professional, I think that they can help them bring in a better way so arduous ” has explained the expert.
For Dr. Bátiz, a person with Alzheimer’s disease is someone who has lost the consciousness of itself but maintains the ability to receive emotions through non-verbal communication. These patients need to be cared for and without a doubt the heroes of Alzheimer’s disease are not doctors, researchers, etc., but their families and their caregivers. Caregivers often are overwhelmed and say can not yet! They also need our care ”.
As has been stressed, I hope that, thanks to the publication, patients, families and caregivers will find help, comfort and hope to continue forward, since the rapprochement, humanity and love ”.