the Association Spanish laboratories of medicines orphans and Ultra-Huérfanos presents her web www.aelmhu.es
Madrid, March 2012.- AELMHU (medicines orphans Spanish laboratories Association and Ultra-Huérfanos), taking advantage of the recent celebration of the world day for rare diseases (February 29)presents its website www.aelmhu.es in order to claim international solidarity towards families with rare diseases.
This new portal is intended to publicize the rare and ultra-raras diseases, as well as the benefits of having available medicines orphans and ultra-huérfanos, to the people who need it.
Our goal is to get that everyone, both professionals, associations of patients and concerned themselves and their families, aware that there is this Association of laboratories dedicated to investigate different treatments for such diseases ”, explains Juan Ferrero, President of AELMHU. our idea is that patients have a greater understanding of their disease andon the other hand, maintain activities that facilitate the rapid and equitable access to treatments ”.
Sober design and easy navigation, the portal aims to cover one of the objectives of the Association is to enable a space for collaboration with the medical and health fields, as well as with the scientific community, with regard to the promotion of knowledge and the benefits of the drugs currently available.
The portal also offers a series of links to patient associations, laboratories associated with other web pages of reference in ultra-raras and rare diseases.
AELMHU is an association created non-profit between several pharmaceutical companies commitment to invest in the discovery and development of innovative therapies and try to improve the situation of patients with rare diseases.
On AELMHU
The Spanish Association of laboratories of medicines orphans and Ultra-Huérfanos (AELMHU) created in 2011, was born of the need to make visible the special characteristics of these diseases and their specific treatments, medications orphans and ultra-huérfanos, in order to improve the situation of those affected by these very rare diseases.
Its main objectives include increasing awareness on rare and ultra-raras diseases and the benefits of having available drugs that treat them as well as lead and promote actions that recognize the value of social drugs and therapeutic orphans and ultra-huérfanos keep their members coordinated their actions to the social institutions and policies (including the national health system) andFinally, to facilitate the rapid and equitable access to medicines orphans and ultra-huérfanos for all those affected.
